This Week's Update! CONTROL!

Well this week has been kind of interesting. Billy has been learned that he has no control over several things in his life right now, so he is exercising his rights to control the few things that he can.....example.....eating.

Billy basically won't eat. He eats two bites of everything you put in front of him and then he's done. Or he won't eat at all. Poor kid weighs 38.2 lbs with the fixator on. He weighed 36 lbs when we checked him into the hospital. So he's probably lost about 5 lbs total so far and he looks like a scarecrow.

He has also learned to control his sleeping situation. He WON'T sleep in his bed. He claims that he cannot sleep without a tv on. The only other tv is in my room, therefore he's in my bed. I actually attempted to put him in his own bed one night this week. He went to sleep in mine, then I transfered him. He was back in my bed at 1:30 a.m.

This weeks doctor's appointment was a quickie. Everything looks great. We're doing great....see you next week. We go back in at 1:45 Monday. They will have to do a bolt changeout soon because we've just about maxed these out on length. According to the measurements on his bolts, we should have lengthened him about 17 mm in each bone or 1.7 cm. So 3.4 cm total for his whole leg. This is getting pretty exciting for me because when he stands now, his foot is almost touching the floor. As soon as we get it there, it should be just a few more days, maybe a week, I will take pictures and post them as this will be the first time in his life that his legs have been the same length.

Physical therapy has been a pain. Billy's knee is staying bent and he screams bloody murder when you straighten it out. He's walking pretty well with his walker now and scoots everywhere on his butt. He's also getting himself out of bed when I just leave him in there by himself.

I just realzied that I haven't posted anything recently about Ally. She's doing absolutely wonderful in school. She is a straight A student. Dance class started last month and from what I can see through the door when I am watching, Ally's one of the best dancers in her class. Ballet especially. I don't think Tap is going to be her thing......

Work is going well for me. I am back at Billy's school for the time being. Billy seems to like that Mom's working there, but he thinks he can command what time we go home so I just have to ignore him.

I will post any updates after his doctor's appointment on Monday!